Our 6th Annual Patient Symposium will take place on Sunday, December 19th from 11am - 4pm EST, followed by our Gala for a Cure from 7pm - 9pm EST.

Connect with other MPSI, MPS II, MPS IVA, MPSVI, LAL-D, and CLN2 families and patients from across the country. Through a combination of online presentations, panel discussions, and breakout sessions, you'll hear from medical professionals specializing in these rare disorders. We'll discuss clinical trials, the latest research, COVID-19, advocacy, and have breakout groups with disease specific discussions. And we'll just catch up and reconnect too!

A speaker list and agenda will be available shortly.

Children's Program and Meals: For immediate households of a rare disease family, there will be a virtual children's program, and for families in North America, we will be shipping you lunch and dinner ahead of time. Households will also be eligible for child care reimbursement if required (please email us for more information - contact info is below).

Registration: Registration is free of charge, and spaces are high in demand, so please register as soon as possible! For rare disease families who wish to join for the children's program and receive meal kits, please register by Friday, December 3rd at the very latest. Registrations after that date will not include meal or supplies for the children's program.

We look forward to seeing you (virtually) on December 19th! We hope you'll also join us after the Symposium for our 11th annual Gala for a Cure. This festive event will include musical acts, stories, awards, and more, and is open to anyone who would like to watch. Register for the Gala here: https://www.eventbrite.ca/e/2021-gala-for-a-cure-tickets-218697278447.

For more information, please connect directly with Alix Hall (alix@theisaacfoundation.com / 647.268.3882) or Andrew McFadyen (mcfadyena@me.com). We look forward to welcoming you all!