A Journey to Cure CJD: A Fundraiser In Memory of Sabrina Lauman

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9910

9910 109 Street Northwest

Edmonton, AB T5K 1H5

Canada

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HAVE YOU HEARD OF CREUTZFELDT-JAKOB DISEASE?

We hadn’t either until August 7, 2018 when our sister, cousin and best friend, Sabrina Lauman was diagnosed and given one month to live.

CJD is terminal, affecting one in every million people. It has no cure and there is no way to slow it down. No one knows why it occurs, in Sabrina’s case it was “sporadic”, a misfolding of protein in her brain. She was only 35, married for 5 years, mom to a 2.5 year old daughter, and 13 weeks pregnant.

This disease progressed extremely fast. As the days and weeks passed, it took away her speech, memory, ability to walk, and her ability to eat. Against all odds, Sabrina stayed with us for six months, and in that time she gave birth to our perfect miracle, her second daughter.


ONLY 985 CASES OF CONFIRMED CJD IN CANADA SINCE 1998

That’s it. Unfortunately, rare diseases like CJD receive little if any funding for research, as public funding agencies favour grants that address common conditions.

That’s where we come in. Our team is dedicated to improving CJD research. Please help us find a cure for Creutzfeldt-Jakob Disease (CJD) with a night of live music and an incredible silent auction. We are working directly with Dr. Valerie Sim, Sabrina’s neurologist, helping fund her research as she and her team work toward a cure for CJD. All funds, including ticket sales, raised by this event will go directly to Dr. Valerie Sim's Lab at the University of Alberta.


SILENT AUCTION AND LIVE MUSIC: PAUL WOIDA - JEFF MORRIS - DR. VALERIE SIM - SIMON GUSHULAK

Tickets also available at the door. 18+. No minors.

INSTAGRAM: @endcjd


ONE IN A MILLION - SABRINA'S STORY

Sabrina is a wife to Brent, a mother to Scarlett (3) and Stella who was miraculously born on Jan 11/19. She is a daughter, a sister, an aunt, a niece, a cousin, and a friend to many. When she walked into a room she lit it up. She was fierce, sassy and wasn’t afraid to tell you how it was. Her laugh was awesome & her smile beautiful.⠀⠀⠀

On August 7, 2018, months after we were trying to figure out what was going on with Sabrina, our world turned upside and crumbled. We got the devastating news that Sabrina was diagnosed with Sporadic CJD (Creutzfeldt-Jakob Disease) which is a very rare & fatal brain disease. It affects one in a million, but in Sabrina’s case it’s one in a billion considering her age. At the time of diagnosis she was given approx one month to live. At the same time she was in her early months of pregnancy.

This disease progressed extremely fast. As the days and weeks passed, it took away her speech, memory, ability to walk, and her ability to eat. Leaving her in a state of vegetation almost, completely dependant on us as a family. This took away her dignity, she felt embarrassed, hopeless & scared.

It is extremely heartbreaking & incomprehensible what this disease does to a person, to the family & friends. But journeying through this horrible time, we continued to love her, be with her & care for her.

CJD has taken Sabrina away from us, but Sabrina didn’t let it take away Stella, our miracle baby. The morning of January 11, 2019 was an emotional roller coaster to say the least. Excited for Stella’s arrival yet scared for surgery and the possible outcome for Sabrina. We didn’t need to worry, as both came through the c-section beautifully.

Sabrina is a warrior, a hero, our hero in so many ways. The power of a mother’s love to fight for her unborn baby’s life is amazing. Stella & Scarlett will learn how hard their mother fought for Stella’s life, even though the odds were against her.

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Location

9910

9910 109 Street Northwest

Edmonton, AB T5K 1H5

Canada

View Map

Refund Policy

No Refunds

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