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Beyond The Medical: Epilepsy Self-Management and Advocacy

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YMCA

20 Grosvenor Street

Toronto, ON

Canada

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Join us for Epilepsy Toronto's annual conference and general meeting. This year's theme, Beyond The Medical: Epilepsy Self-Management and Advocacy, focuses on issues including Adult Independence, Self –Advocacy, SUDEP, Transitional Years and Stress Reduction.

2017 Conference Speakers and Topics

Keynote: Self- Management in Epilepsy- Patty Shafer, RN, MN

Patricia Osborne Shafer RN, MN is the Senior Director of Health Information & Resources and Associate Editor/Community Manager for epilepsy.com. Ms. Shafer is also an epilepsy nurse specialist at the Comprehensive Epilepsy Center at Beth Israel Deaconess Medical Center in Boston, Massachusetts. She has been involved in various capacities with the Epilepsy Foundation, the American Epilepsy Society and the epilepsy community as a whole for many years. Her personal experiences with epilepsy broaden her insights about epilepsy, epilepsy self-management, public health, and advocacy.

Epilepsy Transition, Advocacy and Independence- Steven Lynette

Steven Lynette is an advocate, counselor, facilitator, life skills coach, educator, promoter, and survivor. Steven has long been an advocate for individuals with special needs. He has been involved with Epilepsy Toronto both as an employee and a volunteer. He continues to support the agency as the SEAC (Special Education Advisory Committee) representative for the Toronto District School Board. As a parent of someone with epilepsy he knows firsthand the challenges of a youth in transition and how to best navigate this difficult time.

Transition from pediatric to adult Services- Megan Henze, OTReg(Ont)

Megan Henze is an occupational therapist and a member of the Good 2 Go team in the Division of Adolescent Medicine at The Hospital for Sick Children. Megan completed her Masters in Occupational Therapy in 2009. Megan has worked primarily with young people with physical disabilities in supporting transitions from pediatric service providers to adult service providers and in the development of life skills and was instrumental in the creation of the Provincial Guidelines for the Transitional Care of pediatric epilepsy programs to adult.

Self-Advocacy- Suzanne Nurse, PhD

Suzanne Nurse is a patient advocate and has experience working with community, provincial and national health charities. Suzanne currently works with Epilepsy Ontario as director of information and client services. She represents the Canadian Epilepsy Alliance/l’Alliance canadienne de l'épilepsie (CEA/ACE) at the Best Medicines Coalition, chairs the CEA/ACE Drug Shortages Committee and co-Chairs the Canadian League Against Epilepsy Medical Therapeutics Committee.

SUDEP : The loop of communication- Dr. Rajesh RamachandranNair, MB BS, FRCPC

Dr. Rajesh RamachandranNair is an Associate Professor in the department of Pediatrics at McMaster University. He is a staff neurologist at the McMaster Children’s Hospital and the medical director of the comprehensive pediatric epilepsy program. One of his research interests is in the study of Sudden Unexpected Death in Epilepsy (SUDEP), which will be the focus of his presentation at this conference.

The Joy and Power of Mindfulness-Eva Tickton, MEd

Eva Tickton taught law for 30 years at Seneca College, In 1995 she became interested in meditation and since 2012 has been teaching meditation and mindfulness. Her interest is in combining science and meditation to speed up the rewiring of our brain so we can be happier, more present, and more compassionate.


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YMCA

20 Grosvenor Street

Toronto, ON

Canada

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