Canadian Fabry Association National Family Conference - March 7

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A one day virtual conference for the Canadian Fabry community. A chance to connect and talk with others.

About this Event

We can't all be together in person, but let's not let that stop us from being together virtually. Our community is resilient and strong but I think we are all missing human connection and a chance to talk to others who are affected by Fabry. On March 7th we will have that chance, as well as learn about current and new therapies, a quick overview on Fabry, breakout sessions, and of course our very own board member Dr. Kanwal sharing her best naturopathic tips with us. Lots of prizes to be won!

The conference is for the whole family to attend, and is free to join. It will be on the platform Zoom and we will have tech support available if needed.

We will be offering an opportunity for you to join smaller group networking/conversation sessions at the virtual conference.

In this registration process, you will be able to choose which conversation you would like to join on the day of the conference.

The networking/conversation options are:

1. Family Members and Parents

A place for family members to come and chat about their experiences. You are welcome to join in the conversation or just listen in. This room is a comfortable place for discussion surrounding some of the challenges, tough conversations, and experiences family members share.

2. Teen Chat

Welcoming all the incredible teens to get tips and tricks on how to cope with pain, get connected, learn about youth opportunities within CFA, and get your Fabry questions answered.

3. Patient Tips and Tricks for Pain Management

Hear from the experts (patients) on what works best and how they control their pain. Bring your top tip to share or just join to listen and get some ideas to feel more in control.

4. Open Forum/Open Discussion

If any of the other rooms do not fit what you are looking for, join in on this open discussion, meet other Fabry patients from across Canada and connect with them.

If you have any questions, feel free to contact Sherry Sim, Event Manager at 1-866-655-8548 or by email:

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