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Institute of Translational Medicine (Old Queen Elizabeth Hospital)

Mindelsohn Way B15 2TH

Birmingham

United Kingdom

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Sharing collected data from trials has the potential to exponentially increase the efficiency and accuracy of research and reduce research waste generated from repeated trials. Unfortunately, barriers to do so still exist. These include the difficulty to find, access and use previously collected research data sets because they are not centrally indexed or standardised.

The European Commission unveiled its plans in April 2016 to create a new European Open Science Cloud that will offer Europe's 1.7 million researchers and 70 million science and technology professionals a virtual environment to store, share and reuse their data across disciplines and borders. The aim is to make all data derived from EU-funded research projects FAIR: Findable, Accessible, Interoperable and Reusable. The European Union has fully embraced the FAIR principles, which are created to ensure high data quality, shareability, and usability.

We will discuss the benefits of FAIR data, explain what is required for FAIR data, and give guiding principles on how to create FAIR data. We will also go further into the challenges that we face as we move towards the worldwide implementation of FAIR.

These challenges include:

  • Ensuring all research data is of high quality

  • Standardisation of research data at the source

  • Provide everyone with the ability to make FAIR data (FAIRification)

We will discuss how to deal with these challenges and present our solution to make capturing FAIR data accessible for every researcher worldwide. By making these data available in environments like the European Open Science Cloud, the world will experience a major increase in the quality and efficiency of research. This in turn will help to improve healthcare in the long run, by ensuring better quality of evidence to base our medical guidelines on.

Derk Arts, MD, PhD

Derk Arts studied medicine at the Vrije Universiteit in Amsterdam and recently completed his PhD at the Academic Medical Center (Amsterdam) on computerized decision support systems (CDSS) and improving medical decision making. Besides this he is the Founder and CEO of Castor EDC, an application through which medical researchers can easily and securely collect clinical research data.

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Institute of Translational Medicine (Old Queen Elizabeth Hospital)

Mindelsohn Way B15 2TH

Birmingham

United Kingdom

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