Epilepsy Conference 2018: Knowledge Is Power
Event Information
Description
SESSION 1
EPILEPSY RESEARCH…IMPACTING LIVES
Brain Monitoring and Modulation for Epilepsy
Dr. Taufik Valiante, MD PhD FRCS, Scientist, Krembil Research Institute; Neurosurgeon Toronto Western Hospital
Dr. Valiante will discuss how new approaches and technologies are being developed to monitor and change brain activity to stop seizures and what research will be done within this area over the next 5 years here in Ontario to improve seizure control and quality of life for people with epilepsy.
Interventions to Help Cope with Depression and Memory
Dr. Mary Lou Smith, PhD, Professor, University of Toronto; Neuropsychologist Sick Kids Hospital Epilepsy Program
Dr. Smith will provide an update on the "EpUp" study results, discussing whether an intervention program designed to provide coping strategies for people with epilepsy improves symptoms of depression. She will also describe the new "STREAM" program that is being developed to provide coping strategies to people with epilepsy who have memory problems.
The Evolution of Epilepsy Genetics
Dr. McIntyre Burnham, PhD, Professor, University of Toronto; Neuropharmacologist; Co-Director of EpLink - The Epilepsy Research Program of the Ontario Brain Institute
Dr. Burnham will discuss the role of genetics in epilepsy, what significant research advances have been made to date, and what research will be done within this area over the next 6 years here in Ontario, ultimately highlighting how gene therapy can impact the life of someone living with epilepsy.
SESSION 2
Connecting Families to Resources: Planning for a Good Life
Carolyn Fast, Manager of Outreach & Partnerships, Partners 4 Planning.
People with epilepsy often face a lot of challenges planning for the future of their children/family. In this session the speaker will share how P4P assist families by providing a wealth of practical strategies, creative tools and sustainable solutions designed to help individuals, families and caregivers take charge of the future, today. This includes managing transitions, financial planning, accessing resources like the RDSP, planning for housing etc.
BREAKOUT SESSION
1) SUPPORTING YOUR CHILD WITH EPILEPSY IN THE SCHOOL SYSTEM
Impact of Epilepsy on Behaviour & School Performance
Elizabeth Kerr, PhD, Neuropsychologist, Sick Kids
This talk will address how epilepsy can impact children’s behaviour and academic performance and how seizure type/frequency, comorbidities, and medication side effects impact school success.
Navigating the School System
Miriam Richies, BASC, MA, OCT; Special Education Consultant, TDSB
Many parents still struggle with how to get the support they need at school in order for their children to be successful in the school system. This talk will share ways that parents can better understand the school system and how to access the services and support their child needs.
2) TREATMENTS FOR ADULTS WITH DRUG-RESISTANT EPILEPSY WHO ARE NOT CANDIDATES FOR SURGERY
Vagus Nerve Stimulation (VNS)
Cameron Finlay, Education Manager, LivaNova
VNS is an option for the treatment of difficult-to-treat epilepsy. This presentation will attempt to address the more frequent questions around VNS including surgical approach, patient sensations, expectations and treatment follow-up.
Ketogenic Diet for Adults with Epilepsy
Dr Eduard Bercovici, MSc, MD, FRCP(C), CCNS Diplomate (EEG); Neurologist, Epileptologist, Ketogenic Diet Specialist
This talk will address the Ketogenic diet and specifically how it is being utilized to treat adults with epilepsy. Dr Bercovici will share insights from the new diet therapy clinic at Toronto Western Hospital; the only one of its kind in Canada.
SESSION 3
Ontario’s Epilepsy Guidelines: Knowing Your Treatment Options
Dr. Amaya Singh, PhD, EpLink Knowledge Translation Lead, University of Toronto
In this talk, Dr. Singh will discuss how knowing the recommended diagnosis, treatment and referral pathway can help people with epilepsy find the right treatment at the right time. She will also highlight current recommendations related to the management of epilepsy.
MEDICAL CANNABIS …ACCESS, RESEARCH, IMPLICATIONS
Cannabis Extract for Adults with Uncontrolled Seizures
Dr. McIntyre Burnham, PhD, Professor, University of Toronto; Neuropharmacologist; Co-Director of EpLink - The Epilepsy Research Program of the Ontario Brain Institute
In this talk, Dr. Burnham will provide a status update on EpLink's clinical trial to study the effects of cannabidiol (a cannabis extract) on seizure control for adults with drug-resistant epilepsy.
Oral Cannabis Treatment in Kids with Severe Epilepsy
Maria Zak BScN, MN., Nurse Practitioner in the Division of Neurology at SickKids, with a clinical focus on paediatric epilepsy, children with drug-resistant epilepsy, and the ketogenic diet.
System Navigation and Advocacy Update
Alex Repetski, Parent/Advocate/CEA Advisor, Medical Cannabis Task Force
Alexander will be speaking about being a caregiver and developing dosing protocols, the evolution of the medical cannabis industry over the past four years and how he has seen research flourish and stigma diminish, as well as access to medical cannabis and costs associated.
