$0 – $20

Leap into Understanding Rare Diseases

Event Information

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Location

Location

Glenbow Theatre inside Glenbow Museum

130 9 Avenue Southeast

Calgary, AB T2G 0P3

Canada

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Refund Policy

Refund Policy

Refunds up to 7 days before event

Eventbrite's fee is nonrefundable.

Event description
Rare Disease Network of Alberta (rDNA) is a non-profit corporation that was formed in 2018 to help people understand about rare diseases.

About this Event

Rare Disease Day in Calgary

February 28, 2020

WE WELCOME EVERYONE TO JOIN US IN CALGARY OR FACEBOOK LIVE STREAM (CLICK HERE ) TO SHARE INFORMATION AND LIFE EXPERIENCES OF PEOPLE WITH A RARE DISEASE! MORE THAN 3.5 MILLION CANADIANS OR ROUGHLY 10% OF THE POPULATION HAS A RARE DISEASE.

• OPTIONAL NETWORKING DINNER PURCHASE AVAILABLE

• GET INFORMATION FROM LOCAL AND INTERNATIONAL ORGANIZATIONS

• PARTICIPATE IN A SMALL GROUP SESSION FOR SHARED LEARNING

• CREATE AN INFORMATION PACKET FOR A TOPIC THAT INTERESTS YOU

• SEND US YOUR ARTWORK AND WE WILL MAKE STICKERS FOR EVERYONE

• SEND US YOUR LOGO FOR A GROUP LOGO SHIRT

• DOOR PRIZES AVAILABLE

• OPTIONAL REDUCED ADMISSION AT GLENBOW MUSEUM (only for registered guests)

PROGRAMME

  • 11:30 - 12:00, Poster Viewing
  • 12:00 - 12:20, Welcome and Introduction, Dr. Aneal Khan, Professor of Medical Genetics and Pediatrics, University of Calgary Cumming School of Medicine, Alberta Children's Hospital Research Institute, Calgary.
  • 12:20 - 12:40, From Genetics 101 to the Order of Canada: Message for the Rare Disease Community, Dr. Cheryl Rockman-Greenberg, Winnipeg.
  • 12:40 - 01:00, Going the Distance as a Rare Parent Advocate, David Proctor, Director of Operations, Outrun Rare
  • 01:00 - 01:20, Urea Cycle Diseases, R. Ramona Salvarinova, Clinical Associate Professor, Clinical Director, Division of Biochemical Diseases, Department of Pediatrics, University of British Columbia, Vancouver.
  • 01:20 - 01:30, Discussion
  • 01:30 - 02:00, Refreshments and Activities
  • 02:00 - 02:30, Small Group Sessions
  • 02:30 - 02:50, Living with Pompe disease Brad Crittenden, Executive Director, Canadian Association of Pompe
  • 02:50 - 03:10, When life is short with a rare disease, Jaclyn Tainsh, Brady's Foundation for Pediatric Palliative Care
  • 03:10 - 03:30, The Snow Family Story, Kelsie Snow, Snowy Strong
  • 04:00 - 04:15, Leap Into Understanding
  • 04:15 - 04:30, Raffle Draw for Families connected with Rare Diseases
  • 05:30 - 07:00, Dinner at Milestons (Extra Ticket Purchase Required)

If you are attending this event, you can show your Eventbrite ticket at the front desk to get a special rate to see the Glenbow Museum before the start of the rDNA event.

For Rare Disease organization, if you are interested to have your organization logo on our group logo shirt, you will be contacted by our Event Planning Committee for further details.

For parking and wheelchair access, the best option is the Telus Convention Centre lot 60 located right across the street from Glenbow Museum.

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Date and Time

Location

Glenbow Theatre inside Glenbow Museum

130 9 Avenue Southeast

Calgary, AB T2G 0P3

Canada

View Map

Refund Policy

Refunds up to 7 days before event

Eventbrite's fee is nonrefundable.

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