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mitoTALK - THE MITOCHONDRIAL DISEASE JOURNEY AND THE ROAD AHEAD

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Patricia A. Whelan Performance Hall, Calgary Central Library

800 3 Street Southeast

Calgary, AB T2G 0E7

Canada

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MitoCanada and the Rare Disease Network of Alberta (rDNA) invite you to the mitochondrial disease journey and the road ahead.

About this Event

Donate to help families get continued access for Mitochondrial Disease DNA sequencing for faster answers. CLICK HERE TO DONATE.

It's FREE to register whether you choose to join us in person or use Facebook LIVE STREAM (the link will be sent to you after registration). Registration is required for this free event.

The MitoCanada Foundation was formed in 2010 to raise awareness, support for patients, families, caregivers, and fund research for mitochondrial disease. The Rare Disease Network of Alberta (rDNA) was formed in 2018 to help people understand more about rare diseases and connect the Alberta rare disease community.

Together, as part of Mitochondrial Disease Awareness Week (September 15-19, 2019), we invite you to join us to learn more about the exciting progress being made and road ahead to find a cure!

During this afternoon of learning and sharing, you will hear from patients about their experience living with a rare disease and Calgary scientists and clinicians who are on the cutting edge of research.

We look forward to seeing you there!

Agenda:

12:40 - 1:00 pmRegistration/light refreshments served

1:00 - 1:15 pmBlaine Penny, CEO MitoCanada, “Global mitochondrial disease awareness week and the impact of patient advocacy”.

1:15 – 1:45 pm Dr. Aneal Khan, President of Rare Disease Network of Alberta (rDNA), Professor of Medical Genetics and Pediatrics, Alberta Children’s Hospital Research Institute, Cumming School of Medicine, University of Calgary, Metabolic Diseases Clinic, “A mitochondrial success story: grass roots efforts from patients and their families and the progress achieved in Calgary”.

1:45 – 2:15 pmDr. Timothy Shutt, Assistant Professor, University of Calgary, “Identifying and characterizing novel mitochondrial disease genes and mutations”

2:15 – 2:45 pmLived Experience: Tanner's Journey told by his mother Leeanne

2:45 – 3:15 pm Patient Oriented Research - Speaker TBC

3:15 – 3:45 pm - Mito Challenge - An exciting challenge on how you can make a difference during Mitochondrial Disease Awareness Week (Graham Sherman, Motivational Speaker and co-founder of Tool Shed Brewing Company).

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Date and Time

Location

Patricia A. Whelan Performance Hall, Calgary Central Library

800 3 Street Southeast

Calgary, AB T2G 0E7

Canada

View Map

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