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OPWSA Fall Family and Caregiver Conference 2019

Ontario Prader-Willi Syndrome Association

Saturday, 19 October 2019 from 8:30 AM to 4:30 PM (EDT)

OPWSA Fall Family and Caregiver Conference 2019

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Event Details

Join us for the OPWSA Fall Family and Caregiver Conference 2019!

 

The Ontario Prader-Willi Syndrome Association (OPWSA) invites you to come out for a great day of learning, information sharing, networking, peer support, and fun! There is also wonderful programming for individuals with PWS of all ages and their siblings. The Fun Friends Program will have many activities including the opportunity to explore the exhibits at the Ontario Science Centre.

 

The conference will cover topics on:

  • Practical Behaviour Solutions for individuals with PWS
  • Applying social behaviour education to PWS
  • Encouraging Language with your Child with Prader-Willi Syndrome
  • How to be an effective advocate for your child and yourself
  • Financial strategies and planning considerations for parents of children with PWS
  • Current PWS research and trials
  • Understanding the system for drug access in Canada

Discussion time with other parents and caregivers has been integrated throughout the day to allow time to reflect on the presentations, and ask questions of our presenters.

 

VIEW DRAFT AGENDA

 

There will be a meet and greet social event on Friday evening from 7:00pm-9:00pm at the Hotel Bar. Please note that no volunteer support/Fun Friends Program will be offered during this time.



DATES AND TIMES:

 

Friday, October 18, 2019 - Meet and Greet - 7:00pm-9:00pm
Saturday, October 19, 2019 - Conference - 8:30am-4:30pm

 

LOCATION:

 

Friday Evening Meet and Greet

DV bar I bistro at Toronto Don Valley Hotel & Suites
175 Wynford Drive
Toronto, ON
M3C 1J3

 

***Please note that there will be no volunteer support/Fun Friends Program offered during the Meet and Greet on Friday evening.***

 

Fall Family and Caregiver Conference & Fun Friends Program

Ontario Science Centre
770 Don Mills Road
Toronto, ON
M3C 1T3

 

COST:

 

Early Bird registration is now closed. All early bird registrants have been entered into a draw to win a $100 gift card for a store of their choice. The draw will take place on Tuesday, September 24th at 12pm.

 

General Conference Admission - $80
Fun Friends Program (ages 3-12) - $25
Fun Friends Program (ages 13-17) - $30
Fun Friends Program (ages 18 and up) - $35

 

***Please note that for kids under 6, it is expected that families provide their own volunteer (parent, grandparent, friend, etc.) to look after their child in the Fun Friends Program***



ACCOMMODATION:

 

Toronto Don Valley Hotel and Suites
175 Wynford Drive
Toronto, ON
M3C 1J3

 

The Toronto Don Valley Hotel and Suites is located a short drive away from the Ontario Science Centre. Rooms include free wifi. There is an extra charge for parking of $13.50 (including tax) per night. If you would like to ensure that you have a room with a fridge, please indicate it in the comment section of your room booking. To book your room, click here or call Toronto Don Valley Hotel and Suites at 416-449-4111. Our group booking is no longer available, however, if you do book directly through the hotel and contact OPWSA Executive Director, Jennifer Coens know at ontariopws@gmail.com, she will try to assist you with getting a discounted rate of 10% off. The discounted rate can only be applied if you book directly through Toronto Don Valley Hotel and Suites system and not through a third party. The discount can be applied after you reserve your room.



VOLUNTEER:

 

If you or someone you know would like to be a Fun Friends Program volunteer, complete the volunteer registration form. To volunteer to support the conference in any other capacity, please contact OPWSA Executive Director, Jennifer Coens, at ontariopws@gmail.com.

 


 

 

OPWSA would like to thank SickKids Foundation and Levo Therapeutics for supporting
OPWSA's Fall Family and Caregiver Conference 2019.


 

Have questions about OPWSA Fall Family and Caregiver Conference 2019? Contact Ontario Prader-Willi Syndrome Association

When & Where


Ontario Science Centre
770 Don Mills Road
Toronto, ON M3C 1T3
Canada

Saturday, 19 October 2019 from 8:30 AM to 4:30 PM (EDT)


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Organizer

Ontario Prader-Willi Syndrome Association

The Ontario Prader-Willi Syndrome Association (OPWSA) is a non-profit charity founded in 1982 by parents who wanted to support families living with PWS. OPWSA is supported entirely by a community of donors and sponsors. Learn more about OPWSA by visiting: www.opwsa.com 

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