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Patient Engagement and Ethics: An Online Panel Discussion

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Join the Maritime SPOR SUPPORT Unit (MSSU) and the Newfoundland and Labrador SUPPORT Unit (NL SUPPORT) for a 90-minute webinar exploring ethical issues related to patient engagement.

This webinar is intended for a broad audience with an interest in ethics and patient engagement in health research including patient partners, researchers, Research Ethics Board members, healthcare professionals, decision makers and trainees.

The session will:

  • Introduce a draft CIHR ethics document on developing research partnerships with patients (available for review at http://www.cihr-irsc.gc.ca/e/51217.html)

  • Draw on panelists’ experiences to identify ethical issues related to patient engagement in health research

  • Examine guidance and considerations in the guidelines that relate to issues identified by panelists

This is a free event but space is limited. Register today!

Our Panelists:

Geneviève Dubois-Flynn is the Manager of the CIHR Ethics Office and the Co-Chair of the CIHR Patient Engagement Working Group that developed the draft guidance document.

Jillian Banfield is a patient advisor with the Maritime SPOR SUPPORT Unit. Jillian also facilitates patient engagement in research in Dalhousie University’s Department of Anesthesia, Pain Management & Perioperative Medicine.

Dorothy Senior is an active patient partner in health research projects and an original member of NL SUPPORT’s patient advisory council.

Sharon Newman is currently the Ethics Director of the Health Research Ethics Authority. She is on leave from her role as Regional Manager of Clinical Research at Eastern Health. Sharon has a Bachelor of Nursing, a diploma in Clinical Epidemiology and has more than 20 years’ experience in Health Research.

Chandra Kavanagh is the Ethics Officer for the Newfoundland and Labrador Health Research Ethics Authority. She is also a PhD candidate in the field of biomedical ethics and feminist philosophy at McMaster University.




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