Polycystic Kidney Disease (PKD)
Event Information
About this event
This presentation will provide an overview of Polycystic Kidney Disease and diagnosis and treatment options, including living donor kidney transplantation.
Submit your questions here or go to slido.com and enter event code: Kidney.
Speakers
Dr. York Pei
Dr. Pei is a Professor of Medicine at the University of Toronto and a Staff Nephrologist at the Toronto General Hospital, University Health Network. He obtained his research training in Clinical Epidemiology at McMaster University and later on, in Human Molecular Genetics in Toronto. The major theme of his research program is to identify genetic factors involved in the initiation or progression of common kidney diseases as potential targets for novel diagnostic tests and therapies. His research focuses on genetic, genomic and translational research of three common kidney disorders: Autosomal Dominant Polycystic Kidney Disease, IgA nephropathy and idiopathic nephrotic syndrome; and is supported by grants from the PKD Foundation of Canada, the Kidney Foundation of Canada, Physicians Incorporated Foundation and the Canadian Institutes of Health Research.
Janet Wright
Janet is a mother of three who was diagnosed with Polycystic Kidney Disease in 1990. After retiring Janet gave her time to volunteer for the PKD Foundation of Canada, Kidney Foundation of Canada and now on the Patient Advisory Council of the Centre for Living Organ Donation. Janet’s health over the years ultimately declined to the point where she was in need of a kidney transplant or dialysis. In 2018 a dear friend was tested and compatible to be a living donor. The living organ transplant from Jane Garratt changed Janet’s life. This gift has made Janet even more passionate and determined to help others who are in need of an organ transplant.
Claudia Morgan
Floral designer and living donor kidney transplant recipient Claudia Morgan shares her experience living with polycystic kidney disease (PKD), postponing the reality of kidney failure for a trip to Paris, and turning to her church for help with finding a living donor. Claudia speaks openly about life on dialysis – including the bond you form with your 'dialysis family' – as well as her reluctance to share her health condition with others, pushing out of her comfort zone to find a living donor through social media, and what it's like to go 'viral.' Claudia's story is also featured in episode 6 of Living Transplant, a new podcast from the Ajmera Transplant Centre.
This session is intended for patients, caregivers, family and healthcare providers - but anyone who is interested is welcome!
The webinar will be livestreamed and archived on the Centre for Living Organ Donation's YouTube channel.