Rare and Young Onset Dementia: Knowledge Exchange 2021

Actions and Detail Panel


Event Information

Share this event

Date and time



Online event

Event description
A live virtual event to raise awareness of rare and young onset dementias.

About this event

This live virtual event follows on from last year's Knowledge Exchange, and is a part of public engagement activities of the Rare Dementia Support (RDS) Impact Study, a five-year study funded jointly by the UK Economic & Social Research Council (ESRC) and National Institute for Health Research (NIHR).

The event will feature an update on findings emerging from the Rare Dementia Support (RDS) Impact Study, presentations exploring the clinical symptoms and obtaining a diagnosis for three rare forms of dementia: posterior cortical atrophy (PCA), young onset Alzheimer's disease (YOAD) and Lewy body dementia (LBD). There will also be a presentation by YouQuest, an Alberta-based grassroots organization that provides rehabilitative support interventions for people living with young onset dementia.

A rare dementia diagnosis brings with it a set of unique and complex challenges, yet there is a widespread lack of understanding and a shortage of dedicated resources to support people affected by these conditions.

This free event will be held on Zoom and will be of interest to people living with dementia, family care partners, health and social care practitioners, students, and researchers.



Rare Dementia Support (RDS) Impact Study - Dr. Mary Pat Sullivan, Professor of Social Work and Social Gerontology, Nipissing University, Canada.


Young Onset Alzheimer Disease and Posterior Cortical Atrophy: Clinical symptoms, challenges, and future developments - Dr. Sebastian Crutch, Professor of Neuropsychology, Dementia Research Centre, University College London Institute of Neurology, United Kingdom.

Lewy Body Dementia: Clinical symptoms, challenges, and future developments - Dr. Mario Masellis, Consultant Neurologist, Sunnybrook Health Sciences Centre, Toronto and Associate Professor of Medicine (Neurology), University of Toronto, Canada.


YouQuest - Cindy McCaffery, Co-founder, YouQuest, Calgary Alberta Canada.

If you have any questions or for further information, please contact Dr. Adetola Grillo ( or Dr. Mary Pat Sullivan (

Share with friends

Date and time


Online event

Save This Event

Event Saved