RARE DISEASE DAY IN CALGARY

Sunday, February 27, 2022

12:00 PM - 3:00 PM (MST)

The Rare Disease Network of Alberta invites you to join us for a virtual zoom webinar.

Click here to join the Webinar:

https://us06web.zoom.us/j/85838279655

If you would like to join us in-person at Life Innovation Science Hub 3655 36 St NW, Calgary, AB T2L 1Y8 ; Conference Room Number 216 , Please send an email to info@rdna.ca to reserve your spot. Seats are limited. We will confirm your in-person registration upon emailing us.

PROGRAMME

12:00 – 12:15 | Introduction: Purpose of Rare Disease Day Dr. Aneal Khan, M.A.G.I.C Clinic

12:15 – 12:35 | A Rare Journey into the Future Dr. Emil Kakkis, CEO and President at Ultragenyx

12:35 – 12:45 | A Rare Disease Story of a Family who found a second chance at life; from the eyes of a caregiver in COVID19 Kimberly Wilbur;Kopp

12:45 – 13:00 | Unit Art & Science to Inspire Research & Innovation of Treatments Patricia Weltin, CEO and Founder at Beyond the Diagnosis

13:00 – 13:10 | Question Period

13:10 – 13:15 | Break

13:15 – 13:30 | Future of Genomics in Healthcare Dr. Aneal Khan, M.A.G.I.C Clinic

13:30 – 13:45 | Building the Village: Menta Health Considerations in Rare Disease Christina Crowe, Registered Psychotherapist

13:45 – 14:00 | Question Period

14:00 – 14:15 | All in the Family Dr. Seema Kanwal, ND, Canadian Fabry Association

14:15 – 14:45 | Rare Disease Journeys

14:45 – 15:00 | Calming Exercise Liette Wilson, B.A., Certified Fitness Instructor

REGISTRATION IS FREE ON EVENTBRITE