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Wings Of Change
Sat, 1 April 2017, 4:00 PM – 8:00 PM MDT
We are so excited to invite you to the EVENT OF THE YEAR!! On April 1st we are hosting a Wing Eating Competition and Silent Auction and it's going to be a great time!!
Support Team Alex – Living with Progeria’s Disease
I want to introduce you to Dory Whitford and her grandson Alex, from Edmonton, Alberta. Alex was born in 2012, weighing 7 lbs 12oz., and appeared to be a very healthy baby. His parents took him home and attempted to care for him, but it was soon realized that his parents, although they loved him, were not capable of caring for a child. At 4 months old, social services became involved, and his parents had a decision to make, either surrender him into foster care, or to a family member. His paternal grandmother – Dory - immediately stepped in, and Alex was surrendered to his grandmother, who now has permanent custody of him.
Dory knew something wasn’t quite right with Alex’s physical development, and after several doctor’s visits and tests, she was given a devastating diagnosis – “Progeria’s Disease”
Progeria’s Disease is a rare and fatal syndrome also referred to as the “Aging Disease.” The chances of being born Progeria is 1 in 8 million. In Canada there is one other child and 120 children worldwide.
Most babies born with this disease are born looking healthy, as Alex was, but within the first couple of years of life they begin to display characteristics of accelerated aging such as growth failure, loss of body fat and hair, skin changes, stiffness of hips and joints, generalized atherosclerosis along with heart disease and stroke. Even though their frail bodies are affected, children with Progeria’s intellect are not. The life expectancy on average is 13 years. There is no cure.
Now 5 years old, Alex cognitive ability is not affected in any way and he is extremely smart. Unfortunately his little body is 8 times older than it should be. He has joint contractures of all his extremities. He has trouble tolerating extreme hot and cold temperatures, and has lost his eyebrows, eyelashes and hair. He has difficulty with dressing due to the joint contractures and suffers from photophobia (light sensitivity). Due to his weakened heart, he tires very quickly. He cannot tolerate most foods, and is primarily nourished with formula. He weighs 21 pounds.
Dory receives no financial help from anywhere for Alex’s care. NOT the Government or even Social Services. Ironically if she would have allowed Alex to be placed in foster care she would have received financial help for him. She has gone to the Ministry asking for help, but has been refused any financial help; The Ministry believes this is a “Grey Area.”
Alex is receiving the best care Dory can provide however she is struggling financially to meet all those needs. Alex needs are growing quickly. Dory make every day count for Alex and has provided the best possible life that she can for him.
Wing Eating Competition Details:
2 Ways to Participate:
Individual Competition: The competitor that eats 30 wings and 2 pints of Beer the Fastest, WINS!!! - You could Be ‘KING OF THE WING’
Team Competition: 4 Team members (must have at least 1 female). The team to eat 50 wings and 4 pints of Beer the fastest WINS!!!
Individual Entry Fee is $40 and Team Fee is $100 (You will not have to pay the entrance fee at the door)
Competitors are also encouraged to collect sponsorship to raise money for the Cause - We will provide you the forms necessary!! The Individual and Team to Raise the Most Money wins a Prize! Best Dressed Team Wins a Prize!
Our event also includes a BBQ with a $3 Bar, Silent Auction, Carnival Games for the kids, Balloon Artists, Face Painters
To enter a team into the competition or donate an auction item, please contact Cheryl Willard at 7802897253 or email@example.com or Ryan Strawson - firstname.lastname@example.org