Carion Fenn Foundation was established to Educate, Support and help find solutions for those affected by all Rare Diseases such as Syringomyelia (SM), Chiari Malformation (CM), EDS, Arthritis, Sarcoidosis, LAM, Familial Ataxia and other Diseases or Disorders. There are over 7,000 known rare diseases or disorders and more than 50% of those affected are children. We strive to help those affected from suffering in silence without the help and support that they deserve.
Our foundation was founded by award winning inclusiveness and accessibility advocate Carion Fenn, winner of The Spinal Cord Injury Ontario & University Health Networks Patty Dawson Award, Town of Ajax – Ajax Civic Award & Accessibility Award, and Abilities Awards - Advocacy Award. Our goal is to support communities by teaming up with organizations like the Ajax Public Library and having our Rare Disease Expo support by The Town of Ajax!