When families learn that their child has been diagnosed with MPS or a related lysosomal storage disorder, it places on them a heavy emotional, physical and financial burden that few can relate to or understand. There is no cure for MPS and there are only a few treatments available for specific MPS variants.

The Canadian MPS Society helps ease the burden by directing families to important sources of information, research and medical help, and by connecting them with other families experiencing similar situations to expand their network of support. We try to help families feel less alone in their journey.

Our programs and services include:

Educational Resources– Available in both English and French
Financial Assistance Program– Providing financial support to help families manage costs associated with care and treatments of MPS and related diseases
Advocacy – Supporting families with accessing appropriate care and treatment, connecting to other members for mutual support, and during times of loss and bereavement
National Conference – Our biennial national conference brings together the MPS community to learn about advances in care and treatment while developing life-long friendships
The e-Connection – Our monthly digital newsletter is a current source of news from Canada’s MPS community, including stories from our members and partners, research and treatment updates, and information about upcoming events.

The Canadian MPS Society exists to support all those affected by MPS – individuals, caregivers, families, friends, support workers, and health care providers. Our staff are available by calling our toll-free number: 1-800-667-1846 or by email: info@mpssociety.ca

Registrations are closed

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