BRI Global Guest Speaker Series: Prof. Jan Willem Gorter

Talk Title

Connecting Care, Changing Lives: A National Network for Youth with Severe Brain Injury and Complex Care Needs—Lessons from the Netherlands

Talk Summary

Children and youth with severe acquired brain injury (ABI) often encounter fragmented care across healthcare, education, and community services, leading to delays, inequities, and suboptimal outcomes. In the Netherlands, these challenges have underscored the need for a coordinated national approach. This presentation outlines the development of the KIND & NAH network, a collaborative initiative designed to connect expertise, align care pathways, and improve life‑course outcomes for children and families. Central to the network is a shared vision emphasizing long‑term participation and continuity across settings. Key elements include a tiered care approach with expertise close to home, cross‑sector collaboration, and a Knowledge Center supporting practice, research, and implementation. Early lessons highlight the importance of strong family partnerships, shared frameworks, and sustainable governance.

About the Speaker

Jan Willem Gorter, MD, PhD is Professor and Chair of Pediatric Rehabilitation Medicine at University Medical Center Utrecht. He leads pediatric rehabilitation services at the Wilhelmina Children’s Hospital and the Princess Máxima Center for Pediatric Oncology in the Netherlands. Jan Willem is a pediatric rehabilitation specialist with a focus on children and youth with acquired brain injury and complex neurological conditions. His clinical and research work centers on functional recovery, cognitive outcomes, family‑centered care, and long‑term participation across the life course. Dr. Gorter is Director of the Knowledge Center within the KIND & NAH network, a government-funded national initiative focused on improving (chronic) care, research, and collaboration for children and families affected by acquired brain injury. Jan Willem is committed to advancing family-centered care and translating research into meaningful improvements in practice.