COVID Conversations

rede4blacklives.com

COVID Conversations - Privacy, privatization, surveillance: health care data, ethics and equity in an AI world

This series focuses on the relationship between health care data, Big Tech and privatization, and explores the implications for patient privacy, safety, and equity in Ontario and Canada, with a focus on Black communities. Over 3 days, starting Wednesday July 22nd - Friday July 24th, we bridge disciplines and conversations, bringing together academics and community scholars. For the full program, <a href="https://rede4blacklives.com/blog/2020/07/10/covid-conversations/" target="_blank" data-msys-clicktrack="0" rel="nofollow noopener noreferrer">click here</a>. Format: Each guest will have 10-15 minutes to share their knowledge and expertise, followed by a brief Q and A with the moderator. Sessions will close with questions from attendees.This event has multiple sessions: please feel free to sign up for all or some of them. Session information below: Wednesday July 22nd 2:30pm-3:30pm EST Health care data and informed consent in the 21st century: what tech companies have planned for patient information, and why you need to know.<a href="https://www.nytimes.com/2019/04/23/opinion/google-privacy-china.html" target="_blank" data-msys-clicktrack="0" rel="nofollow noopener noreferrer">Jack Poulson</a>, will provide a window into the plans the &quot;Big Six&quot; tech companies (Amazon, Google, Facebook, IBM, Microsoft, Apple) have for patient data. This session is a must for hospitals, community health centres, health care policy-makers, researchers, community legal clinics and all those whose work involves confidential health care information and equity. In a recent interview in <a href="https://www.theguardian.com/world/2019/jul/13/google-whistleblower-launches-project-to-keep-tech-ethical" target="_blank" data-msys-clicktrack="0" rel="nofollow noopener noreferrer">The Guardian</a>, Poulson discussed the need for tech workers to understand what they are engaging in, saying, &quot;I believe tech workers need informed consent about when their work may lead to loss of life or suppression of human rights or freedoms.&quot; People working in health care should have this same right. Further, the health system has an obligation to inform patients about what they&#x27;re really agreeing to when they share their data with health care systems and software. LLana James and Jack Poulson will provide tools to help think through what it means to be collecting and handling confidential health care data in the 21st century.Thursday July 23rd 2:30pm-3:30 pm ESTData, algorithms, and automation as &quot;weapons of math destruction&quot;: a mathematician&#x27;s insights into the implications of AI for equity and universal health care.Mathematician <a href="https://www.youtube.com/watch?v=heQzqX35c9A" target="_blank" data-msys-clicktrack="0" rel="nofollow noopener noreferrer">Cathy O’Neil</a> will explain in <a href="https://www.youtube.com/watch?v=_2u_eHHzRto" target="_blank" data-msys-clicktrack="0" rel="nofollow noopener noreferrer"></a>plain language the way that data, algorithms and automation function together, to exploit individuals and communities. This session will explore the mounting reports of data grabs by various actors during the pandemic, and investigate who benefits, and how. LLana James and Cathy O&#x27;Neil discuss accountability mechanisms for algorithm development, data laws and regulations with the potential to limit exploitation of peoples&#x27; personal health information. Using a thought experiment, Cathy will explore the real costs of insufficient data protections and demonstrate why patients, researchers, administrators, clinicians, and policy-makers need to be proactive in protecting peoples&#x27; data.Friday July 24th 2:30pm-3:30pm ESTPublic health, ethics and COVID-19: how the next generation of scholars and organizers see the current moment<a href="http://blackpublichealth.ca/" target="_blank" data-msys-clicktrack="0" rel="nofollow noopener noreferrer">Nishan Zewge-Abubaker</a>, Ciann Wilson and LLana James will explore the intersection of public health, race-based data, privacy, and Big Tech within local and national contexts. They will reflect on the ethical questions Cathy O’Neil and Jack Poulson brought into view, with a focus on data sharing during and post COVID-19. Recent changes to Ontario’s <a href="https://www.ontario.ca/laws/regulation/900569" target="_blank" data-msys-clicktrack="0" rel="nofollow noopener noreferrer">Reg. 569</a>, <a href="https://www.ola.org/en/legislative-business/bills/parliament-42/session-1/bill-188" target="_blank" data-msys-clicktrack="0" rel="nofollow noopener noreferrer">Bill 188 Schedule 2</a> the Freedom of Information and Protection of Privacy Act, and <a href="https://www.ola.org/sites/default/files/node-files/bill/document/pdf/2020/2020-03/b188ra_e.pdf" target="_blank" data-msys-clicktrack="0" rel="nofollow noopener noreferrer">Bill 188 Schedule 6</a> the Personal Health Information Act, will be explored as a case study. This dynamic and interactive conversation from the next generation of scholars and organizers will examine how data—and who controls it—affects people, neighbourhoods and health.

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COVID Conversations

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