Info for Butterflies- a Turner Syndrome Conference.

Calling all butterflies, families of butterflies, as well as anyone interested in gaining knowledge related to Turner Syndrome!

Having been through a Turner Syndrome diagnosis myself, and having had the amazing people come into my life throughout my diagnosis as well as my own journey into healthcare, I decided to find out if they were up for an adventure! Surprise! I have been working with an amazing group of physicians, mentors, and group of people to put together a conference for butterflies, their families, as well as anyone else who is interested in gaining reliable information! I am ecstatic and so grateful to all involved! We cannot wait to see you there!

Important Note: In order to ensure there are no conflicts in scheduling for both the speakers and attendees, contrary to the original announcement, a final date has been set for July 12th, 2024. See you then!

Registration: Registration will open and tickets will be available on February12th, 2024 right here! Initially, we will be releasing 100 tickets. Admission is free. Details regarding lunch to come on February 11th, 2024. Based on demand, further announcements and information will be released. The official Info for Butterflies Trailer, more information regarding the agenda, and more will be released the day before on February 11th, 2024.

Follow the Instagram page for further updates on important information, or come back to this site! Any questions can be submitted via the Instagram account, or on this page via the contact organizer button below. Parking information will also be released upon registration.

Info for Butterflies-a Turner Syndrome Conference:

🦋 I am beyond excited to make the announcement below. It has been a long time coming! The conference rooms in the Kinsmen Learning Centre on the fourth floor of the Alberta Children's Hospital, next to the Alberta Children's Hospital Foundation , are booked, and the speakers are set! One speaker will be announced each Wednesday, beginning October 18th, 2023! Let’s work towards ending the stigmas and the misinformation. 🦋

To Follow on Instagram 👉: link: https://lnkd.in/gXyc9c3v

Instagram Username👉: info_forbutterflies

List of clinics with posters containing further information and the link to the website to be determined (as described in the initial announcement below).

🙌 #infoforbutterflies|#butterflies|#turnersyndrome|#knowledgeispower|#calgaryalberta|#calgaryevents|#calgarybuzz|#calgary|#calgarynow|#calgarylife|#alberta|#albertacanada|#canada|#conference|#conferences |#conferenceseason|#conference2024|#knowyourworth|#knowyoucan|#knowledgesharing|#knowledgeexchange|#knowyourself|#knowledge|#knowledgetransfer|#knowmore 🙌

We are amazed by the speakers so for for the conference! Here is a summary! Given the holidays are fast approaching, we will be resuming speaker announcements each Wednesday beginning on January 10th, 2024. We hope everyone has an amazing Christmas and holiday season, and we cannot wait to see you in 2024! There are some big announcements, surprises, and amazing speakers still ahead! Also, make sure to keep a lookout for the conference information throughout the Alberta Children’s Hospital beginning in January when you visit!

Are you ready? For this weeks announcement, we will be taking a look at where we are for the conference and what we will be covering so far.

Did you know, that even if butterflies may be nervous for the road ahead after seeing outside sources, we would love you to know that there is good news for you in the video below! There are also many safe and reliable sources to gain information on how butterflies are special , how that can impact them, and how your healthcare team can guide you with safe treatment options (there are many after all!).

Even better. We will be going through this all more in depth at the #info_forbutterflies conference! We are excited! How about you!? :).

Faith Day:

-Personal experience throughout my diagnosis with TS and tips and tricks.

-Coping with a diagnosis at an older age.

-My personal experience with growth hormone therapy and tips and tricks.

-My personal experience with hormonal replacement therapy and tips, tricks, and signs and symptoms I’ve noticed to be beneficial.

-My personal experience throughout school and university, and tips and tricks I found useful.

- Mental health and staying healthy-can hormone imbalances make a difference?

-Finding self worth, self confidence, finding your path, and achieving your goals.

-Understanding and living with a body that functions differently and tools I’ve found lead to success.

-Self advocacy and how to be successful as you head into the adult world.

-Information and tools I’ve found useful having TS.

Dr. Laurie A Hiemstra:

-Finding your gift and using it to promote diversity and inclusion.

-Leadership.

Dr. Laura Kaminsky:

-School and what to expect when it comes to differences in learning.

-Individual Personalized Plans or IPP’s.

-Coping with a diagnosis and medical condition from both a patient and parent prospective.

-Mental health.

Wendy Schwarz:

-Needle coping.

-Growth hormone replacement therapy.

-The importance of proper information from reliable sources. -What to expect when it comes to a TS diagnosis and treatment for TS in regard to the nursing prospective.

Dr. Safina Jetha-Kurji:

-Proper dental care and how dental health may be impacted by TS.

Dr. Brenda Mummery:

-Proper vision care and how TS can impact vision and eye health.

Linette Lahey:

-Motor skills, orthopaedic variation, and coordination.

Dr. Paul W.M Fedak:

-How cardiac health can be impacted by TS.

-What to expect from a clinic or surgical prospective when it comes to TS.

-Cardiac monitoring and treatment.

Dr. Satish Raj:

-Finding good mentorship and achieving your goals.

Tracey Day:

-The prospective of having a child with TS, supporting them, coping, and my personal experience.

Here we are, and tomorrow is already February 12th, 2024. You know what that means! It will officially be the day that registration opens for the #info_forbutterflies conference! Are you ready? We know we are! Registration opens via the Info for Butterflies Website at 10:00 AM MST! Feel free to spread the word! It will be so unbelievably exciting to see you all there! All information regarding registration will be available on the main page of the website

To come this week:

-We have three more speaker announcements left! One will take place this coming Wednesday on February 14th, and second last and final announcement will follow on February 21st and 28th. We apologize for any confusion over the last week for anyone unaware of the pause in announcement due to registration fast approaching.

-The Info for Butterflies Trailer and another exciting announcement will become available! Keep an eye out throughout the week on social media, and the website above! We have decided that all information related to registration will the released on February 11th, one day prior, and the rest will follow throughout the week!

We hope everyone is as excited as we are!

Happy long weekend!

We hope everyone had a great week. Apologies for the delay in updating you this week! After considering the best way to keep you all up to date on the #info_forbutterflies conference, we have made the decision to announce our final three speakers and any updated information all in the same post on April 27, 2024, given we do not want to bother anyone with too many posts. We know there have been many already! In the meantime, feel free to see the exciting announcement below! Our final three speakers are amazing, and we are so excited for everyone to meet them!

You can save your spot for the conference below!

We are so exited so see everyone there!